tag:blogger.com,1999:blog-7716266031006082752.post1258466977107614963..comments2023-03-25T05:04:22.774-04:00Comments on Coping with SIDS: Some Facts About SIDSAnonymoushttp://www.blogger.com/profile/06978106493173201688noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7716266031006082752.post-49810891441828400972012-10-07T17:15:46.876-04:002012-10-07T17:15:46.876-04:00Yep, it's infuriating.
Katie (who lives in O...Yep, it's infuriating. <br /><br />Katie (who lives in Oregon and lost a baby to SIDS) and I have talked about the lack of SIDS as COD. She talked to one of the state people and apparently, even though it's not reported as SIDS, in Oregon the deaths are still part of the SIDS statistics. In Kentucky, however, they are not. So it's different even state-by-state. Toby died of SIDS. The coroner called it SIDS. His death is listed as "Sudden Unexplained Death of an Infant", however. They are now saying that SIDS is an offset of this and that more states will start using this term in the future. <br /><br />I guess, at that time, it will REALLY look like SIDS cases have dropped. Ha. Anonymoushttps://www.blogger.com/profile/06978106493173201688noreply@blogger.comtag:blogger.com,1999:blog-7716266031006082752.post-54044272975015687262012-10-07T14:02:16.805-04:002012-10-07T14:02:16.805-04:00Maxie's death is not called SIDS in his autops...Maxie's death is not called SIDS in his autopsy report. It's just unexplained. I don't believe that the rates of SIDS has been lowered at all. I believe that these deaths are just not reported as SIDS. For example, in Oregon, the coroners are not allowed to report a baby's death as SIDS. Probably in other places as well. I don't know what the politics are about but there are politics. In fact, when we took Mo to see a "SIDS specialist" that was the only take-away. He explained to us that this is political. It's crazy that this is the leading cause of death in babies....that mothers and fathers all over the world worry about this killer....that they check on their babies throughout the night whether or not they even know anyone whose baby has died of SIDS (I know I checked Max ALL of the time)...and that there STILL is not enough money to fund the research! Infuriating!!!!Abby Levisshttps://www.blogger.com/profile/15748394086960661826noreply@blogger.comtag:blogger.com,1999:blog-7716266031006082752.post-1090544687168596652012-10-07T01:26:29.033-04:002012-10-07T01:26:29.033-04:00It took us a year to get the death certificate and...It took us a year to get the death certificate and the official cause of death. During that time, we weren't sure what it would be listed as. It was a weird kind of relief to actually get it. <br /><br />We wonder if Toby had a seizure or maybe had the biotinidase deficiency like Iris does. Or, if perhaps he had a Chiari Malformation that compressed his brain stem like I have...so many things that COULD have killed him. In the end, we just don't know. There is a stark kind of emptiness in that that eats at me, and makes me worried about my living children. <br /><br />I think about you and your family a lot. Anonymoushttps://www.blogger.com/profile/06978106493173201688noreply@blogger.comtag:blogger.com,1999:blog-7716266031006082752.post-5665341224902723642012-10-07T00:05:25.773-04:002012-10-07T00:05:25.773-04:00Thank You, Rebecca this is very well explained and...Thank You, Rebecca this is very well explained and easy to understand. I know we follow every measure that pediatrics and doctors advice when we had our babies. Up to this day we have spent a lot time and money in getting second opinions as to what happen to our baby, Jayden. Not a single answer. The low serotonin levels theory is something that does make sense to me so far. Im constantly follow by this shadow of pain that doesnt go away. Thinking of Toby. Also of you and Sam and Iris. Many huggs. Jayden's Mommyhttps://www.blogger.com/profile/05687674253192563095noreply@blogger.com